Welcome to my blog! This is a place of information and hope for fellow Canadians who are suffering from Lyme disease. I want to share with you the knowledge I have gained during my fight with this debilitating, frightening, and misunderstood illness. I hope you will be blessed.

Wednesday, April 27, 2016

Important! Sign up for the conference webinar!

Dear Canadian Friends,

The Canadian government is holding a conference on Lyme Disease as per the requirements of Elizabeth May's law - A Federal Framework on Lyme Disease Act. This is the very first step in discussing the abominable situation Lyme sufferers here find themselves in. Obviously we can't all attend the conference, but we can sign up to view it in webinar format. Even if you do not wish to watch the conference, would you mind taking a moment to fill out the webinar application? We are trying to show the government that there is truly some interest in this issue. The link is https://t.co/aCqAcsKwD6. Scroll down to where it says "PDF fillable form". Submit your information.

Thank you for considering this.

Saturday, February 06, 2016

Canadian Lyme conference coming

This just made me cry.  Bless her heart for being so brave.

 
 
I do applaud the U.S. government for moving forward with hearings such as this.  But it's just too slow of a process while young people such as this girl in the video, watch their childhood and teen years pass by. 
 
Canada will be hosting a Federal Framework on Lyme Disease Conference in Ottawa on May 16-17.  Read about it here.  This is required as part of the Federal Framework on Lyme Disease law that was passed a couple of years ago, spearheaded by MP and Green Party leader Elizabeth May.  Let us hope and pray that the message gets through to the health community.  Perhaps there will never be agreement between the two opposing sides in this controversy (IDSA vs. ILADS), but please, oh please, release doctors from the constraints and allow them to treat patients using whichever standard of practice they deem to be best for the situation.
 

Saturday, January 23, 2016

Awoooooooooooooooo!


Image result for full moon


Today is a full moon.  But I probably didn't have to tell you that if you have Lyme.  Are you feeling worse today?  More neuro symptoms?  More fatigued?  More anxious?  I'm answering yes to all of the above.  I suppose that there is some strange relief in knowing that the cause is the full moon, and that I'm joined by countless others who are enduring this.

So yes, my Lyme has returned.  I'm having a bit of a relapse after having been antibiotic-free for 6 months.  Oh, how I was so enjoying the freedom of being pill-free!!!  But in December, my symptoms started to creep back.  To be honest, I had been neglecting the triad of good health:  eating well, sleeping enough, and exercising regularly.  It just got so busy in December preparing for Christmas, celebrating Christmas, cleaning up from Christmas, then writing report cards for the last 3 weeks.  I've been burning the midnight oil and eating too much gluten and sugar, which is just bad news all around. 

I've smartened up now, and am working on all 3 of these areas.  New Year's goals:  1) At least 7 hours of sleep a night  2) Eat grain-free and sugar-free (with the exception of one gluten-free starchy carb serving at dinner)  3) Exercise 3 times a week once I get my sleep stabilized.  Sadly, I'm back on antibiotics and have an appointment with my LLMD in a couple of weeks.

I noticed that I was feeling particularly bad this week and decided to check the calendar.  Yup...a full moon was approaching.  Do you believe in this full moon stuff?  It is not superstition, you know; it is science.  I have only to look at the behaviour of my students during a full moon to attest to the fact that the gravitational pull on the Earth affects us physically and mentally.  And it is certain that this phenomenon affects the reproductive cycle of Borrelia burgdorferi. 

I went in search of an explanation of this online, and found this interesting article which explains why we feel worse during the full moon, and sometimes the new moon.  Apparently, animals are sensitive to electromagnetic energy, and this includes microorganisms.  When the Borrelia sense the electromagnetic changes of these time periods, they are programmed to reproduce.  When they reproduce, there are obviously more organisms floating around your body.  The antibiotics are therefore killing off more bacteria than normal during this time, and you end up with a herxheimer reaction.  In other words, you feel crummy!  (Or let's say, crummier than normal.)

So there you have it.  You're not crazy.  It's a real phenomenon.  Do all you can to support your body and detox.  Drink plenty of water.  Add lemon to your water.  Take a detox bath.  Sleep.

Thinking of you all, and hoping you feel better soon.

Wednesday, January 06, 2016

Hello again, and welcome to a new year!

Well hello everyone!  Happy New Year!  I thought it was time for a new blog post; it's been a while.

I certainly don't post as much as I used to when I started this blog in 2012.  I was so on fire then, wanting to shout to the world everything I knew about this horrific illness.  I wanted to convince everyone of the TRUTH, and make known the inexcusable lack of knowledge in the medical community.  I wanted to change the system and change everyone's minds! 

Well, I doubt I've achieved much of those things through my humble little blog here, but I do know that I have been able to come alongside individuals and provide guidance, reassurance, and hope.  I know I needed that so very much when I was terribly sick with Lyme in 2011 without any medical explanation of what was wrong with me. 

I just want all of you Lyme sufferers to know that you are not alone in this.  So many people in Canada, the U.S., Australia, and Europe are travelling on this same journey, and it really is wonderful, in this age of technology, that we can connect and support one another through the rough times.  I am so honoured to be able to help you through this, via the stories and information on my blog. 

I am often reminded of The Starfish Story that I heard about 25 years ago, but which has always stuck with me.  I'll post it below.

Thank you for visiting.  And many blessings in 2016!

The Starfish Story

While walking along a beach, an elderly gentleman saw someone in the distance leaning down, picking something up and throwing it into the ocean.

As he got closer, he noticed that the figure was that of a young man, picking up starfish one by one and tossing each one gently back into the water.

He came closer still and called out, “Good morning! May I ask what it is that you are doing?”

The young man paused, looked up, and replied, “Throwing starfish into the ocean.”

The old man smiled, and said, “I must ask, then, why are you throwing starfish into the ocean?”

To this, the young man replied, “The sun is up and the tide is going out. If I don’t throw them in, they’ll die.”

Upon hearing this, the elderly observer commented, “But, young man, do you not realise that there are miles and miles of beach and there are starfish all along every mile? You can’t possibly make a difference!”

The young man listened politely. Then he bent down, picked up another starfish, threw it into the back into the ocean past the breaking waves and said, “It made a difference for that one.”