Awoooooooooooooooo!



Today is a full moon.  But I probably didn't have to tell you that if you have Lyme.  Are you feeling worse today?  More neuro symptoms?  More fatigued?  More anxious?  I'm answering yes to all of the above.  I suppose that there is some strange relief in knowing that the cause is the full moon, and that I'm joined by countless others who are enduring this.

So yes, my Lyme has returned.  I'm having a bit of a relapse after having been antibiotic-free for 6 months.  Oh, how I was so enjoying the freedom of being pill-free!!!  But in December, my symptoms started to creep back.  To be honest, I had been neglecting the triad of good health:  eating well, sleeping enough, and exercising regularly.  It just got so busy in December preparing for Christmas, celebrating Christmas, cleaning up from Christmas, then writing report cards for the last 3 weeks.  I've been burning the midnight oil and eating too much gluten and sugar, which is just bad news all around. 

I've smartened up now, and am working on all 3 of these areas.  New Year's goals:  1) At least 7 hours of sleep a night  2) Eat grain-free and sugar-free (with the exception of one gluten-free starchy carb serving at dinner)  3) Exercise 3 times a week once I get my sleep stabilized.  Sadly, I'm back on antibiotics and have an appointment with my LLMD in a couple of weeks.

I noticed that I was feeling particularly bad this week and decided to check the calendar.  Yup...a full moon was approaching.  Do you believe in this full moon stuff?  It is not superstition, you know; it is science.  I have only to look at the behaviour of my students during a full moon to attest to the fact that the gravitational pull on the Earth affects us physically and mentally.  And it is certain that this phenomenon affects the reproductive cycle of Borrelia burgdorferi. 

I went in search of an explanation of this online, and found this interesting article which explains why we feel worse during the full moon, and sometimes the new moon.  Apparently, animals are sensitive to electromagnetic energy, and this includes microorganisms.  When the Borrelia sense the electromagnetic changes of these time periods, they are programmed to reproduce.  When they reproduce, there are obviously more organisms floating around your body.  The antibiotics are therefore killing off more bacteria than normal during this time, and you end up with a herxheimer reaction.  In other words, you feel crummy!  (Or let's say, crummier than normal.)

So there you have it.  You're not crazy.  It's a real phenomenon.  Do all you can to support your body and detox.  Drink plenty of water.  Add lemon to your water.  Take a detox bath.  Sleep.

Thinking of you all, and hoping you feel better soon.

Update on my biofilm treatment

Hello to my fellow Lyme sufferers......uh, let me rephrase that......my fellow Lyme survivors!  Ya, that's much better.  (You know, the glass half-full thing, rather than half-empty.) 

I thought I'd bring you up to date on this latest phase of my treatment.  As you may remember, I relapsed in January after being off antibiotics for 7 weeks.  So here I am, back ON the antibiotics, but I've added some biofilm busters - the herbals Banderol and Samento.

I've been working my way up to the full dose of these.  It sure takes a long time when you start with 5 drops and only add 1 drop every 2 days until you finally get to 20.  I'm almost there.....today I did 19 drops of each (2 times).

So how has it been?

Well to be honest, I haven't felt this crummy in a long time!  I'm very tired on this regimen.  I seem to get a lot of headaches, and once in a while, that Lyme brain fog rolls in.  The other night, I had a hard time sleeping.  I woke up every two hours with a splitting headache.  When I tried to nap the following day, I got those brain vibrations/tremors as I was drifting off to sleep, and it kept waking me up.  Strange, I know.  But many of you will understand what I'm talking about.  So many Lyme patients talk about body vibrations.  It feels like you're sticking your finger in an electrical outlet!

So what does this all tell me?  Well, maybe I'm herxing.  Or maybe I have yeast overgrowth which is triggering cytokine production, causing symptoms similar to Lyme.  It's hard to say.  I've made an appointment with my naturopath so that I can tackle the yeast problem if that's what she thinks I have.

If I'm herxing, then that's great!  The dormant Lyme is coming out of hiding, and biofilms are being broken down, and more of the bacteria are being killed off.  And that's the whole point of being on the Banderol and Samento.  So I'm not going to complain.  I just hope that things settle down after doing a few months of this treatment.  I'm even considering staying on a preventative dose of Banderol and Samento when I'm done, just to police the remaining critters.

If there is anyone out there who may be reading this who has actually achieved remission, I'd love to hear from you!  How long have you been in remission?  What are you doing to build up your immune system?  Are you taking any special supplements?

Before I sign off, I'd like to refer you to a wonderful blog entry I read this week from the blog Infectiously Optimistic.  To find the goodness in chronic illness is such a blessing.  I thank the author for her uplifting perspective.

Goodbye biofilms - I hope!

I'm starting on a new herbal regimen in addition to my antibiotics - Banderol and Samento.  I received them in the mail today....finally....after waiting 2 1/2 weeks for them.  I'm both happy AND nervous to embark on this treatment, which will last for 4 months. 

First off, here they are.  Ta da!  They look so lovely and innocent, don't they?  But I hear they pack quite a punch.

This herbal treatment is going to hopefully help me get rid of any Lyme germs that are preserving themselves under biofilms.  Biofilms are a slime coating that exist on some Lyme bacteria, and which antibiotics are unable to penetrate.  Lyme is stealthy.  It finds ways to hide and protect itself, only to come out of hiding at some later date and send the host (aka ME) into relapse.  Banderol and Samento break down biofilms, and are able to kill all three forms of the Borrelia bacteria - the spirochete, L form, and cyst form. 

The downside of Banderol and Samento is that people often report herxheimer reactions (also called die-off reactions).  As the bacteria die off, toxins are released too quickly for the body to dispose of, and symptoms can flare up or you can feel flu-like for a period of time.  I know what herxheimer reactions feel like.  My worst herx occurred 3 days after I started antibiotic treatment in 2011.  I felt awful for 6 days, and then it subsided.  They came regularly during my treatment for about a year, and then finally I was free of them.

Dr. Marty Ross, an LLMD who has a practice in Seattle, Washington, has provided a lot of very good information about Banderol and Samento, and has seen a lot of success with this treatment in his practice.  Check out his website, Treat Lyme and Associated Diseases, if you want to know more about this herbal regimen.

Wish me luck.  I'll let you know how it goes.

Still on the roller coaster, but life is good

If you have come to my blog because you have been diagnosed with Lyme, I want to give you some encouragement.  Many blogs out there appear to focus on the negative, not because the writers are 'being' negative, but because Lyme is such an up and down illness.  It takes a long time to get well, so Lyme sufferers often feel unwell during their treatment.

I want you to understand that Lyme treatment is like being on a roller coaster.  You feel a bit better, then you feel ill again, then you feel OK for a bit, and this repeats itself over and over.

Once thing that contributes to not feeling well is the 'herxheimer reaction'.  This occurs when beginning antibiotic treatment, or changing antibiotics.  As the bacteria begin to die off, the body is overloaded with the dead spirochetes and is unable to dispose of them quickly enough.  Other articles I've read state that the dead bacteria give off neurotoxins.  You may feel flu-like, and your symptoms will feel worse.  But it DOES pass. 

When I started on doxycycline one year ago, I had a herxheimer reaction on my third day of treatment.  I felt flu-like, had the chills, and was tired.  It lasted for six days.  I have had many herxheimer reactions over the past year.  Lately, they seem to produce a terrible fatigue that lasts a couple of weeks.  I think I'm in the middle of one right now.  My doctor said to stop my antibiotics for a few days to help my body catch up with toxin disposal. 

There are many other things a person can do to help rid the body of toxins:  drink lots of water, squeeze the juice of a lemon into your water, take a bath with 2 cups of epsom salts.  Some people have an inability to get rid of toxins and have to take medications such as cholestyramine to help.

It's wonderful when a 'herx' passes, because then you usually feel better than you did before the herx.  That has been my experience, anyway. 

I started feeling very good around June 1, which is one year since starting antibiotics.  When I first saw my LLMD in June of 2011, I asked him how long it would take for me to heal, and he said about a year.  And what do you know......it was a year!  I was overjoyed in June, as I had more energy and was feeling so good, almost 'normal' on some days.  I started wondering when I might go off my meds!

But now, in July, I've had a bit of a backslide.  I started getting fatigued once again about a week ago.  Why would this be?  Am I having another herx?  Am I reacting to the full moon?  (Apparently, Lyme symptoms are worse then.)  I also found out that my thyroid levels have gone out of whack again, and I'm a bit hypothyroid.  That could certainly be contributing to the tiredness, too.  Hopefully, the thyroid problem will correct itself soon.  I discovered the root problem:  A pharmacist had ADVISED me that it was OK to take my Synthroid (thyroxine hormone) with my minocycline each morning.  Apparently, this is a no-no!  After double-checking with 2 other pharmacists and 2 doctors, I've been told not to mix the two.  The minocycline was likely preventing the full absorption of the Synthroid.  It's too bad I was ill-advised 4 months ago, and now will spend my summer 'tired'. 

I see my LLMD this week and have lots to discuss with him.  We might change up my meds.  Not sure.  I'll keep you updated.

But just so you know, and this is the encouraging part, I really AM feeling quite good, despite some lingering symptoms.  I am able to be a wife and mother, and do all of the things I need to do:  cook, clean, laundry, drive kids around, enjoy a movie with hubby, have company overnight.  I could not do ANY of those things a year and a half ago.  So, the antibiotic treatment has been worth it.  It has given me my life back. 

Things CAN improve......persevere and never give up hope!