Welcome to my blog! This is a place of information and hope for fellow Canadians who are suffering from Lyme disease. I want to share with you the knowledge I have gained during my fight with this debilitating, frightening, and misunderstood illness. I hope you will be blessed.

Showing posts with label Dr. Murakami. Show all posts
Showing posts with label Dr. Murakami. Show all posts

Monday, April 01, 2013

Spring is here - Remember tick safety

I recently reviewed how to properly remove an embedded tick by watching Dr. Murakami's YouTube video.  Two methods are demonstrated here:  The intradermal blister technique and the straw and knot method. 



I've never had any experience removing an embedded tick.  I know what you're thinking......"Then why do you have Lyme disease?"  Well, perhaps it was a nymph (a baby tick the size of a poppy seed) which fed and fell off without being noticed.  OR....what I think is more likely....I may have been infected from mosquito or black fly bites when I was vacationing up in the Muskoka area of Ontario a few years ago.  Many Lyme-literate doctors believe that these insects can also transmit the borrelia burgdorferi bacteria.

I was recently in a tool store and saw a display for a "Tick Key".  It's a little tool to attach to your key ring that apparently helps you remove an embedded tick.  I messaged Dr. Murakami on Facebook and asked him about the key, and he does not recommend it.  It can leave the head of the tick embedded in you, with the opportunity to transmit the bacteria.

The blister technique is only to be done at a doctor's office or in the ER.  But the straw and knot method is easy enough for anyone.  If you're going camping or hiking, be sure to take along a straw and some thread, and review the technique beforehand.  Remember that the straw is used to simply guide the knot downwards over top of the tick's body, so it gets as close to the embedded head as possible.

And remember:  DO NOT use petroleum jelly, a hot match, nail polish, or other products on the tick.  These may cause the tick to become distressed and regurgitate its stomach contents, including the Lyme bacteria, into you.

Please be careful this spring and summer, and click here to learn how to prevent tick bites in the first place.

Wednesday, March 20, 2013

lymeSAVERS

I'd like to introduce you to Kevin Sherriff, a Canadian teacher who is battling Lyme disease.  He lives in Whitby, Ontario.  He has written about his struggle with Lyme on his fantastic blog, The Lyme Chronicles.  I feel a bit of a connection to Kevin because I, too, am a teacher in Ontario, and I was diagnosed with Lyme disease by the same Lyme doctor that Kevin goes to.  I know, understand, and have lived his struggles.  Small world. 

Now that Kevin's health has improved somewhat, he has decided to give back to others by creating a non-profit charitable foundation called lymeSAVERS whose mission it is to alleviate the financial burden of Lyme disease for Canadians needing treatment.  Individuals would be helped by means of a bursary, which would allow them to seek treatment that is not offered in Canada.

If you are considering which organizations you might like to support by way of a financial donation, I thought I'd let you know about lymeSAVERS.

The first fundraising event organized by lymeSAVERS is a 5k Run/Walk/Stroll in Whitby on May 11, 2013.  Read the details here.  The evening before the walk, lymeSAVERS will host Dr. Ernie Murakami for an information session on Lyme disease.  Click here for time and location.

Dr. Murakami is a very knowledgeable Lyme-literate medical doctor who has helped many Canadians.  I had the pleasure of attending a seminar by Dr. Murakami last year.  Check out his website, Dr. E. Murakami Centre for Lyme. 

Thanks, Kevin, for doing such a great job helping other Lyme sufferers!  This is precisely the kind of thing that we need to do to bring some sort of meaning and positive outcome out of our suffering. 

I hope and pray that this horrendous Lyme situation in Canada will change one day, that the medical system will be properly informed and trained, that diagnosis will be quick, and treatment paid for by our public health insurance plan.

Until then, we need to continue to lobby, educate, and help.  That is my intention in creating this blog, and Kevin's intention in creating lymeSAVERS.

Sunday, September 23, 2012

Dr. Murakami: A successful tour in southwestern Ontario

How wonderful that many of Dr. Murakami's Lyme disease presentations were well-attended.  His presentation in Kingston had 175 attendees.  Impressive!  My city only had about 60 from what I could judge, and although I was disappointed with this turn-out, I need to look at the big picture.  Hundreds of Ontarians were better educated about Lyme Disease after last week.  Thank you, Dr. Murakami!

I took notes during the presentation, and I've been wanting to post them since the presentation last week.  Our session lasted for almost 3 1/2 hours, with individuals asking questions at the end about their own situations.

Notes from Dr. Murakami's Presentation

Dr. Murakami began his presentation with a little history about his family, why he decided to pursue medicine, and how his medical career began as a GP in a small town in B.C.  It was a very interesting story which helped us to better understand who Dr. Murakami is, and why he's doing what he's doing for the Lyme community.

Here are some jot notes I took about Lyme disease:

- The IDSA is deeply entrenched in their ideas, and this is why the 2 sides are unable to talk.  The IDSA sees chronic Lyme disease as a 'syndrome', not an 'infection'.
- Yet, peer-reviewed studies have proven that it is an infection!
- To say that Lyme can be cured with 30 days of antibiotics is a lie.
- Lyme has similiarities to syphilis; they are both spirochetes.  They invade every organ of the body.
- Doctors don't recognize that it is a multi-system illness.  What do you do if you have one of those family doctors who says, "One symptom/complaint per visit"?
- Lyme is more resistant than syphilis.
- One moose in B.C. had 200 000 ticks on it!
- The nymphal (baby) stage of the tick is the size of a dot.
- The rash from a nymph bite is so small you wouldn't even notice it.
- In one study, one tick layed 10 000 eggs.
- When Lyme statistics are stated, multiply that by 10 to come up with the actual number.  This is because Lyme testing is so inaccurate.
- Lyme cysts can be frozen and later thawed and injected into mice who will develop Lyme disease.
- The increase of Lyme is due to global warming.
- B.C. was the last place in North America to get Lyme.
- Very few illnesses give you a perfectly circular rash that goes out from the point of the bite.
- After a bite, Dr. Murakami recommends 3 weeks of antibiotics to kill the spirochetes and eggs (cysts).
- The rash for Ehrlichiosis looks more like a dot, not a bulls-eye.
- Manitoba Ministry of Health is the only province that recognizes that Lyme is a 'clinical diagnosis', and that longer term antibiotics may be necessary. 
- There is a difference between what the government says and what the College of Physicians there says.
- Normally, IgM antibioties indicate an acute infection, while IgG antibodies indicate a chronic infection.  However, in chronic Lyme disease, continual re-infection keeps the IgM antibodies up beyond what we would think is the acute phase.
- The PCR culture by Advanced Labs costs $600.  This is the test that Dr. Burrascano is working on.
- President George W. Bush had a Lyme bulls-eye rash.  Dr. Murakami wonders if it has developed into neuroborreliosis due to lack of adequate treatment.
- If you have gone untreated for 5 years, you will have permanent cysts and damage.
- In IV therapy, there is a big difference in improvement depending on the length of treatment - 1 month VS. 3 months.  However, doctors here won't do 3 months.
- An LLMD in the U.S. has had favourable results in her studies of the herbs Banderol and Samento.

My questions during Q&A

Question:  If I re-do my IgM Western Blot, should I see a reduction in antibodies if I have been on treatment for a while?
Answser:  Yes, that can happen.

Question: I have read that when you're done your treatment, it is useful to pulse some doxycycline one or two days per month to keep the bacterial load down.  What do you think?
Answer:  No, this is not useful at all.  That small amount of antibiotic would have no effect on the bacteria.

Question:  How can I prevent relapse after my treatment is done?
Answer:  It all depends on the strain of borrelia you had.  Some are more resistant.  You need to do the logical things to help your immune system:  healthy eating, exercise, etc.  Don't eat sugar....all bacteria/viruses feed on sugar.

Finally, here are Dr. Murakami's thoughts which I copied from his Facebook page:

Six successful meetings in Ontario done and 2 more to go in Toronto and a special case to be presented at Mount Sinai hospital. I will enjoy the vew on the VIA rail this afternoon. Thank you all for contacts and encouragement. There were Political MP representatives, MD and NDs at the Ottawa meeting yesterday. A heart felt thanks to all those who attended and helped with donations and to all the organizers who made all this possible. I cannot get over the announcement of the NDs privileges to prescibe medications in this province (March 2013). I have given one talk at the Naturopathic Medical School in Toronto and annually at the Boucher Naturopathic School and they are all on board to learn about Lyme disease unlike my peers.  My philosophy is to teach them about evidence based medications and even educate on a one to one basis by phone.

Sunday, September 16, 2012

Don't miss this opportunity!

Dr. Murakami

If you live in Southwestern Ontario, I hope you will take the opportunity to hear Dr. Murakami's lecture as he travels across our region.  I am looking forward to it, and I hope that he may be able to answer some questions I have about end of treatment.  Here is the information on the Lyme disease Association of Ontario's website:

The LDAO is pleased to announce they will be hosting six presentations by Dr. Ernie Murakami, Canada's foremost medical expert on Lyme disease, in September 2012.

As President and Founder of the Murakami Centre for Lyme Research, Education and Assistance Society, Dr. Murakami's educational efforts continue across the nation.  He is fulfilling his dream to bring Lyme awareness to new heights and to educate the general public on the very real threat of contracting Lyme in Canada and what we need to do to change the way Lyme is viewed in our country.


The schedule of events is as follows:

Sept. 14 - Fort Erie

Sept. 15 - Burlington

Sept. 17 - London

Sept. 18 - Brampton

Sept. 20 - Kingston

Sept. 26 - Toronto

For times, locations, and maps, click here.

See you there!
For more information on Dr. Murakami and Lyme disease, visit his website Dr. E. Murakami Centre for Lyme.